End-of-Life care for patients with dementia
- The Longest Loss: Alzheimer's Disease and Dementia
Hospice Foundation of America program
- Does Hospice Improve Quality of Care for Persons Dying from Dementia?
Bereaved family members of people with dementia who received hospice reported higher perceptions of the quality of care and quality of dying. Journal of the American Geriatrics Society August 16, 2011
- Medicare Expenditures Among Nursing Home Residents With Advanced Dementia from the Archives of Internal Medicine January 10, 2011
- Ethical Issues in Alzheimer's Disease: End-of-Life Care from the Alzheimer's Association. Alzheimer's disease in its advanced stage should be defined as a terminal disease.
- Prediction of 6-Month Survival of Nursing Home Residents With Advanced Dementia Using ADEPT vs Hospice Eligibility Guidelines
- The Clinical Course of Advanced Dementia The New England Journal of Medicine
Volume 361:1529-1538 October 15, 2009 No. 16
Dementia is a leading cause of death in the United States but is underrecognized as a terminal illness.
- Dying from Dementia, Greg A. Sachs, M.D.
The New England Journal of Medicine Volume 361:1595-1596 October 15, 2009 Number 16
Studies have shown that patients with dementia who receive hospice care also have fewer hospitalizations and milder psychiatric symptoms as compared with those not receiving hospice care.
- Video decision support tool for advance care planning in dementia British Medical Journal Published 28 May 2009 BMJ 2009;338:b2159
- Hospice Care for Patients with Dementia
Journal of Pain and Symptom Management Volume 34, Issue 1, Pages 7-16 (July 2007)
- Estimating Prognosis for Nursing Home Residents With Advanced Dementia
JAMA Vol. 291 No. 22, June 9, 2004
Advanced dementia is an incurable, progressive condition for which palliation is often the primary goal of care, regardless of life expectancy.
- Integrace Institute at Copper Ridge (formerly The Copper Ridge Institute)
The Copper Ridge Institute is at the forefront of scientific research related to the treatment and care of those with Alzheimer's disease and other dementias.
- Dementia Care Practice Recommendations for Assisted Living Residences and Nursing Homes from the Alzheimer's Association (8.29 MB file)
- Alzheimer's Disease and End-of-Life Issues
NIH National Institute on Aging
- Montgomery Hospice flyer for families: Expert End-of-Life Care for Alzheimer's Patients: when is your loved one eligible?
- Medicare's Hospice Benefit for Beneficiaries with Alzheimer's Disease, a publication of the Alzheimer's Association
- New York Times article: Treating Dementia, but Overlooking Its Physical Toll Tara Parker-Pope October 19, 2009
Dementia is a physical illness, too - a progressive, terminal disease that shuts down the body as it attacks the brain. Although the early stages can last for years, the life expectancy of a patient with advanced dementia is similar to that of a patient with advanced cancer.
- Dementia At the End of Life U.S. National Institutes of Health, National Institue on Aging
- Coping with Late-Stage Alzheimer's Disease Alzheimer's Disease Education & Referral Center